I could never buy why I and the Fadeleys were not invited to Jon Gall’s memorial. Jon’s caregivers were there. They might talk about how they kept Jon alive with the help of a feeding tube in his stomach. He could not talk, and could barely move. When I went and saw him, he pulled the tube out of his stomach right after I left to go see Joy Gall in her room, she in the hospital for a infected foot. I volunteered to follow the ambulance to Riverbend Hospital where it was reinserted. He looked distressed. He could not form an words, just grunts.
Mark Gall told me he was making a Trust for Jon while he was fully conscious and had much mobility. He was suicidal at the beginning of his illness, because he studied his disease on the internet. He was very smart. He knew what was coming. Why on earth would he not leave a Living Will, giving directions to pull the plug on his life support? John Urness helped Mark, and myself, around the same time. I signed a directive that was mandatory for this law firm, to pull the plug. This does not sound right;
” he developed a progressive neurological disorder, adrenomyeloneuropathy, but continued to live a rich, challenging life.”
Jon knew he was not going to live a rich and challenging life.
Jon Presco
Living Will
This document — also known as a health care declaration — bears no relation to the conventional will or living trust used to leave property at death. It’s a document that lets you state what type of medical treatment you do or do not wish to receive if you are too ill or injured to direct your own care. (Among other things, you can use it to be sure doctors do — or do not — “pull the plug.”) The document may have a different name in your state (it’s often called a “declaration”), but you’ll recognize it as the place where you write down your specific wishes about types of medical care.
April 11, 1976 –
August 20, 2013
Jon died of pneumonia with his loved ones by his side. At the age of 27, he developed a progressive neurological disorder, adrenomyeloneuropathy, but continued to live a rich, challenging life aided by his devoted caregivers-Erica, Jessie, Kasia, Kristen, Michele, and Xondra.
Jon was born in Eugene, the only child of Mark and Joy Gall. He attended Edgewood Elementary School, Spencer Butte Middle School, and South Eugene High School. He then earned a bachelors degree in psychology from the University of Oregon’s Honors College. He graduated summa cum laude and accepted an invitation to join the Phi Beta Kappa Society. Subsequently Jon engaged in rewarding work with distinguished researchers at the University’s College of Education for several years.
Jon was an accomplished pianist and loved learning, sports (especially basketball and tennis), and travel. He lived on Guam with his parents while in fifth grade; he enjoyed snorkeling there and serving on his school’s military drill team. In high school he pursued his love of Spanish by staying with a family in Spain one summer and a family in Mexico another summer. Jon’s travels also took him to Bali, Canada, Israel, Japan, and much of the United States. A special memory was his trip to the 1995 Rose Bowl game.
Jon is survived by his parents, by his aunts Judi, Darlene, Diane, and Susan, and by his first cousins Darin, Jocelyn, and Kheir. He also leaves behind his good friend Gerard and his “second family”- Nitza, Benny, Nurit, and Amir. The Schwabskys warmly opened their Eugene home to Jon for ten years before they returned to Israel. Memorial contributions to United Leukodystrophy Foundation.
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Published in Eugene Register-Guard on August 27, 2013
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